Wednesday: Still waiting for call, messing with wigs, etc

Well although I spent the afternoon glued to my phone I did not receive the call from the surgeon. The surgeon, oncologist and radiologist were supposed to discuss my case wednesday morning and give me a call regarding an action plan later during the day. Either they forgot or they are baffled as I am.

But I am not rushing with this group since I actually want to go with the other group. I still do not have my port in I hope there is no waiting period between putting the port in and chemo. Oh and I also have to worry whether I will have another operation to remove more lymph nodes that is a really tough decision I really do not have a gut feel for that and am receiving conflicting suggestions. hmm... and another operation means delaying the chemo for another 2 weeks until the body recovers. I have been lately wondering whether I am being tested for my patience and judgment calls, decision making skills. I am pretty good at all but it is getting kind of tiring and I can not wait until a solid action plan is laid out and I can just cruise and not think all the time.

Tried to see whether any other centers other than MD Anderson had remote case management. Mayo does not. Sent out a couple of more emails to friends that I have in medical field asking what they were thinking about this all.

My upper body mobility is increasing very quickly I almost have full range of motion back. ( I would say about 70% is back) Driving is comfortable.
Since the drains have been taken out the fluid is accumulating under my arms giving 2 little pudgy spots under my arms, the ps had stated that this was normal and the body should be able to absorb it.

Went out to lunch with a couple of my friends and then stopped by a wig store since I was advised to get a wig before starting chemo. I actually had a very good time and was surprised how good the wigs looked. (hate to admit but a lot better than my own hair)

These are the pictures of the ones that I liked. Both are human hair which requires maintenance but are very comfortable. The synthetic ones are not very comfortable but require a lot less maintenance. ( the highlighted one got the most votes at home but the other one actually looked better than in the photo)

Getting conflicting information from insurance regarding wig coverage, will decide on what to get after I see how much my .ss is covered ( we are really talking serious $$ here.. you are not going to believe it but they are about 700-800$ each ! ) Tomorrow will check some other wig stores.

We were talking with Medi the other day about my hair and she had suggested that I donate it to www.locksoflove.com a public non-profit organization that provides hairpieces to financially disadvantaged children under age 18 suffering from long-term medical hair loss from any diagnosis. The wig specialist said that I had to have at least 10 inches at the longest part of my hair a criteria that I definitely meet. Just before chemo starts I will go ahead and cut it really short and will send the hair in. I am really excited about this !

Got an email from fuel belt who is stated they were VERY interested in developing a product for breast cancer patients that will carry their drains, will need to see what the best path is to pursue that I think that the fuel belt is a definite 'must' for people having 4 drains. With 2 drains I was able to stick them in my pockets and move around but 4 was pretty cumbersome to deal with.

Dropped Paxil to every other day it kind of made me drowsy all day although I was on the minimum dose.. or maybe I should take 1/2 dose daily. Will have to experiment with that.

Wednesday was Roshashanah and had the family over for dinner my mother did almost all the cooking. And sisterinlaw brought the infamous decadent chocolate cake yummmm !!!! I did sneak in 1/2 glass of red wine shouldnt hurt.