Monday, busy as usual maybe a light at the end of the tunnel that I will finally start my treatment ?

After dragging myself out of bed at 8:30 all drugged up from the Tylenol PM's that I took at night started my 'harassing' phone calls to every possible department to get the attention of the surgeon and/or the oncologist so I could get a phone call from either of them. I really think they dropped the ball and am not sure that anyone is taking responsibility/action for my treatment, this is a really bad feeling.

Went to the center in person and whispered to the receptionist:

'Listen I am really pissed off I am not getting the promised calls I do not know what my next action plan is and I am really frustrated'



She got the message and gave me a 'special' phone number. The number of of 'special/secret' phone numbers that I have is directly correlated to the number of bitch fits I have had to have to get things going.



Congratulated myself for not yelling them outloud disturbing the others who were waiting to see the doctors. I hate when people do that and create a scene, although I definitely felt the sweet temtation to throw a 'terrible two'



Went to plastic surgeon he wants to wait 2 more weeks before starting inflation, since there is still some dead skin cells at the suture site he does not want to add additional stress by inflating. I was told that this usually happens to smokers and exsmokers ( guilty here - but had quit 12-13 years ago thought I had repaired the damage, obviously not) and people with circulatory problem. Anyways not too worried about this at this point.
I am still not allowed to swim, was hoping to start Aqua Aerobics to loosen up the body.


Then went to Nuge and made a couple of calls. As I tried to reach my surgeon I was told that she had left for the day.. then I just lost it and got ugly then requested to talk to the office manager who immediately assured me that she was on top of my case and would get surgeon to call me. Now this is more like it. But why do I need to push arent they supposed to be on top of things ?

We went to the wig store in Dr. Philips with Nuge and spent quite a long time trying on wigs. I found a really cute one but it is human hair, the price is crazy and it requires maintenance. Still have not made up my mind, placed one synthetic 1 real hair wig on hold until Friday.

Finally received a call from the surgeon basically this is what she said. They had agreed on the following action plan for me ( it is not up to me as I thought ) Somehow they dropped the ball on who was supposed to call me last week.

No additional surgery, only radiation after chemotherapy. If the radiologist had stated that no rads were needed after additional lymph node removal ( if the result was negative) then they were going to go ahead with surgery, but as of now surgery is out of the question since the radiologist felt that I needed rads in any case. Additional lymph node removal was going to be mainly for staging purposes and the outcome would not be impacting the treatment options, so why mess further with the nodes.

Although this gave me a sense of relief the majority of responses that I had received from ( 2 oncologists, 1 cancer research specialist ) all stated that they would rather have additional lymph nodes removed. Only 1 surgeon had stated the reasoning that my current group said no more surgery.

My gut feel is 'keep your nodes' get nuked !

Tomorrow is my Muga Scan which is supposed to check whether I have any preexisting heart condition. A standard test prior to getting chemo.

I am feeling extra hyper ( my normal state is already hyper) and can not sit down and relax with a good book, seems like a waste of time and always have the urge to keep moving.. hmm.. I do not like how this is going, need to slow down a bit.