Went to see the radiation oncologist in the PM. They actually thought that I had came to get mapped ( they do some kind of mapping session as a dry run for radiation) and the doc was not quite happy that I was in the room again with a lot of questions.
- If I need radiation is the size of the implant ok or does it need to be deflated ?
- Does silicone implant withstand radiation in case we do the exchange before radiation?
- How long after the surgeries(axillary node+port removal+implant exchange) can rads start ?
- what should be the timing for the rads after chemo ? How soon, what is the latest ?
- Is it possibility to do longer duration lower dose radiation to prevent implant damage?
- Will your decision change regarding me getting rads if no additional nodes test positive from the axillary node dissection ?
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But before I was able to start the questions the conversation drifted to a totally different state. I could say that he was getting annoyed with me circling the same questions over and over again well I was getting annoyed with myself too! Sometimes I think my body manufactured this disease so I stop trying to be in control of everything giving the message ' Hey ! You always want to be in control, you never go with the flow.. here you go try to be in control of your treatment.. now how do you like that ???'.
He went over the same things that he had told last time, basically that in his opinion I needed radiation even if there were no nodes that were positive, his decision based on the multifocal aspect of the tumor and vascular lymphatic invasion. He certainly did not believe that axillary node dissection was needed or was even helpful. His point was that axillary node dissection is not part of the treatment but was just for staging purposes.There already had been 6 nodes removed so there was no point in going in and removing more. And I had already planned out my treatment so additional information on staging was not going to change anything. He dis'sed the surgeon opinions that I got and went as far as saying that the if any other non-radiation oncologist doctors were giving opinions on whether or not to radiate me they were practicing medical malpractice !! Oh geeshhh.. now what ???
My oncologist is not coming outright saying that I do not need radiation but he is saying that I need the surgery and the next step will be determined after I get the surgery.
The rad onc.. also did not like the idea of my getting the implant exchange at the same time with the axil node dissection, he said that the radiation had to start 3 weeks from the end of chemo and it was not a wise thing to delay the radiation for a plastic surgery.
I got out of the office totally puzzled AGAIN. What he said really made sense but I have to trust my oncologist ( which I do ) since he will be monitoring me from now on... just as I thought that I had reached a decision.
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