Got an early call from the Moffitt C Center doc I was impressed, he said I was the topic of several heated discussions, it appears I can even cause a turmoil when I am ill !
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They had discussed my case and the input was given by 3 surgeons, 1 radiation oncologist and 1 oncologist.
The Radiation oncologist said that given my present state I would definitely need rads.
However this is where it gets tricky, if I get an axillary node dissection I might not get rads depending on the outcome.
I will get zapped(rads) if
2 more nodes
or
More than 20% of total nodes removed
Test positive for having/or having had (wiped out by chemo)
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Do not get rads if:
None of the nodes show present or past sign of cancer.
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I was really baffled/pulling my nonexistent hair out on how to put all the variables together to plan the treatment Ferit came to the rescue as the ultimate organizer.
My variables are:
1 - Getting axillary node dissection (for certain)
2 - Getting radiation (depending on the outcome of the 1st)
3 - Swapping out the expanders with silicones - surgery (together with axillary node dissection or later the later could be up to 6 months if I get radiation to let the tissue heal)
4 - My Plastic surgeon preferring to do the exchange before the radiation ( he said he has been seeing too many healing problems of doing the exchange after the radiation)
5 - The optimal time to start radiation (if needed) is 4-6 weeks from last chemo
6 - The axil node dissection can be done earliest 3 weeks after my chemo.
7 - Radiation doctor might not be comfortable with big implants and might want to deflate before radiation(which is not an option if I get the exchange with real implants at the same time with the axillary node dissection)
8 - If the exchange and the axillary node dissection can be done in the same operation have to coordinate the plastic Surgeon Pope and surgeon- chambers
9 - Finding a pathologist and getting the pathology reviewed by one that is really careful and can spot any signs of past cancer in the nodes.
So Ferit came up with the following plan :
1 - Get an appointment with Surgeon and tell her you want the axil node dissection and ask if she can in any way assist in getting the pathology assigned to a specific pathologist.
2 - Ask the Plastic surgeon to continue inflating the expanders (we had stopped because of possibility of radiation)
3 - Get the results of the axillary node dissection.
If no nodes are/were positive :
Rads are not needed continue with oncologist with hormonal treatment(tamoxifen) and continue with reconstruction at a leisurely pace have the 2nd surgery to swap out the expanders with the real implants.
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If nodes are/were positive and they meet the criteria of >4 or >20% of total nodes:
Get radiation, and if needed get the expander deflated.
Wait for 6+ months then get the reconstruction.
So far everyone is under the assumption that I will not have additional nodes test + I am praying for that scenario !
Got an appointment with my surgeon for Monday 9:15
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