When I was on the AC chemo all I heard was that ohh.. once you are done with this, Taxol is a breeze. Maybe I was expecting to be perfectly normal and had high expectations of myself( which is unrealistic duhh.. this stuff is designed to kill cells !!! ) or this stuff really did not agree with me.
Since they gave a huge amount of steroids I was the Energizer bunny next day but crashed the following day, no nausea but felt really tired. It also did away with my sleep(which was probably looking for an excuse for pulling an MIA anyways) for at least 3 days. And gave me restless leg syndrome where I was constantly fidgeting. Ativan and Ambien are not doing the trick. I was also given a high dosage(30 mg/daily of Glutamine )to prevent neurapathy and muscle aches paind.
We had gone to Ft. Lauderdale for Ferits Company Holiday dinner past weekend and being stuck in a hotel room unable to sleep was no fun. I was cracking up at myself, while trying to keep warm wrapped in blankets, futile attempts to get rid of the restless leg syndrome,jumping up and down, doing yoga in the small bathroom, trying not to wake up Ferit. I gave up trying to go back to sleep and ended up getting a lot of reading done sitting on the toilet.
Sunday when I tried to walk around the block I had the feel of my legs buckling underneath me and my ankles ached ??? I thought wtf !! ( pardon the lang) I never ever had muscleskeletal problems this was a huge surprise. I got really upset until I posted my symptoms to an online forum and the girls there said that interestingly the 1st treatment of taxol was the worst, somehow the body does get used to it. Phew !
Today is the 6th day and my joints feel recovered we'll see how my weight session goes tomorrow.
Some weight damage was done though, I do have an excuse this time= The steroids ! ( not really it was my usual 'comfort food seeking when sh.. hits the fan') I am up at 156 pounds.( gained about 14 pounds since this all started back in August)
Went to see a radiation oncologist to continue my poll on whether to get further surgery to remove more lymph nodes or rads and this guy who is in the same group as my oncologist and he basically said that I needed rads for sure and additional surgery to remove more lymph nodes was a totally useless act only for staging purposes to determine the treatment(whereas my oncologist wants me to get the surgery).
We have appointments with 2 more doctors in Clearwater and Tampa the upcoming weeks and by the end of this year our decision will be sealed. I am swaying from one side to the other, all the doctors seem so convincing !
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